Photography Contest to celebrate this year’s World Lupus Day in Malaysia

It will be a visual celebration for Malaysia’s World Lupus Day 2008, thanks to members of Shutter Asia who are holding a photography contest with all entry fees donated to Persatuan SLE Malaysia (PSLEM).

More information here

World Lupus Day 2008

Come join us at 1 Utama Shopping Centre to celebrate World Lupus Day 2008 on Saturday, 10 May 2008, and enjoy an exhibition of entries to the ANYTHING BUTTERFLY photography contest organised by Shutter Asia with entry fees donated to Persatuan SLE Malaysia (PSLEM), as well as talks on various aspects of SLE by respected specialists in the medical profession.

The official launch of World Lupus Day Malaysia 2008 by YB Dato’ Liow Tiong Lai, Minister of Health, Malaysia, will include a cake-cutting ceremony and the reading of the World Lupus Day Proclamation.

Please confirm your participation by calling (03) 7957-7672, or sending an email to This e-mail address is being protected from spambots. You need JavaScript enabled to view it , by Thursday, 8 May 2008.

The first 100 persons with SLE to arrive on 10 May will receive a Nikon umbrella, courtesy of Nikon Malaysia.

The World Lupus Day Malaysia 2008 programme will be held at 1 Utama Shopping Centre’s Community Corner on the 1st Floor, Oval Area.

Full programme here

Anything Butterfly Contest Winners

First Prize: Hemin Xylan B. Mahzan


Judges’ comments:

” … chosen because of the clarity of the subject and nice clean and blear background. The colours were also very nice, with the blue sky, red flowers and good contrast and definition on the blue butterfly.”

Second Prize: Low Wuu Shin


Judges’ comments:

” … we liked the composition and the use of the plant as a leading line, to draw the viewers to the butterfly. The colours was also vibrant and we liked the highlights on the plant from the sun.”

Third Prize: Goh Lai Chong


Judges’ comments:

” … it was technically superb [but] lost out to the other two because it lacked the vibrancy of the first two pictures.”

Congratulations to the winners.

Special thanks to James Wu and his team at Shutter Asia for organising the contest and donating the entry fees to PSLEM’s fund-raising efforts.

PSLEM recognised as one of Top 10 NGOs in Malaysia

Persatuan SLE Malaysia (PSLEM) was named as one of the top 10 NGOs in Malaysia at the Malaysia NGO Awards 2008 presentation held in Petaling Jaya on 19 May 2008. PT Foundation was selected as the top Malaysian NGO, followed by the National Kidney Foundation in second place, while Cheshire Home Selangor and Befrienders tied for third place.

The selection was based on areas such as governance, transparency, resource management, and fund-raising practice. The top 10 NGOs will be featured in the NGO Awards 2008 Casebook to serve as a guide to best practices among NGOs in Malaysia.

Considering how small and young PSLEM is, the Executive Committee is very grateful to be selected among Malaysia’s top 10 NGOs and has pledged to keep up the good work.

PSLEM starts SLE Fund to help patients with joint replacement and cataract operations

The treatment for an SLE sufferer depends on the symptoms he or she experiences and how severe they are. In treating SLE, the doctor has to prevent flares, treat the flares, and minimise organ damage and complications.

The main treatment in SLE involves the use of corticosteroids, the most common being prednisolone. Long-term side effects of corticosteroids can include weakened bones (osteoporosis), high blood pressure, high cholesterol, high blood sugar (diabetes), damage to the arteries, infections, and cataracts.

As such, Persatuan SLE Malaysia (PSLEM) has started an SLE Fund to help needy patients who have to undergo joint replacement and cataract operations due to the side effects of corticosteroids. The SLE Fund will subsidise the purchase of their prosthesis or lens implant.

More information here

PSLEM featured on popular TV programme

Persatuan SLE Malaysia (PSLEM)’s work in raising public awareness of the condition received a much-needed boost when “Wanita Hari Ini”, a popular programme on TV3 about today’s women, gave valuable airtime to a “live” discussion about the condition this morning.

The segment featured Dr. Asmahan Mohamed Ismail, a Rheumatologist at Hospital Selayang, and Ms Sarah Kambali, an SLE patient and member of PSLEM.

Despite being on air “live”, Dr Asmahan and Sarah were very calm and articulate as they shared about the condition, Dr Asmahan from her point- of-view as a physician and Sarah from her personal experience as an SLE patient.


Dr Asmahan gave an overview of the condition, including its causes, symptoms and treatment. In reply to a question about whether a female SLE patient can have children – an issue very close to all women’s hearts – she said the patient should check with her doctor first. The patient’s SLE condition should be stable for at least six months to a year before she tries to conceive. If she is on prednisolone, hydroxychloroquine or azathioprine, these medications must be of a low dosage during her pregnancy.


From the patient’s point-of-view, Sarah recounted what she went through before being diagnosed with the condition, her search for information online and sharing the information with her physician, as well as the benefits of being a member of PSLEM.

Dr Asmahan also answered questions from members of the public who called in during the phone-in section of the programme.


PSLEM’s telephone number and website information appeared on the screen during the latter part of the discussion. This resulted in the PSLEM office continuing to receive telephone calls with questions about SLE long after the programme ended at 1:00 p.m., and throughout the day, too.

PSLEM’s recently revamped website also showed a jump in visitor traffic from 12:30 p.m. onwards when the website’s URL was first shown on the screen.

Our thanks to Dr Asmahan and Sarah for speaking on PSLEM’s behalf in the programme, and also to “Wanita Hari Ini” for giving us valuable air-time to talk about the SLE condition.